Lilianna Anonfornow

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everyone should should tell the entertainment industry that it is tacky and horrifying to poke fun at children with primary immune deficiency diseases (bubble boy). For those of us who have to live with the horror of what these children endure, we are not amused. Big B

It seems to me that no other childhood illness that has over a 70% chance of death as a prognosis is ever poked fun at by the entertainment industry. And yet, year after year, I continue to hear comments that are supposed to be funny being directed at this particular group of illnesses. I get it. The idea of a bubble is funny. Guess what? Most of these children get monthly infusions instead of living in bubbles. Is it a cure? No. The prognosis for my grandson is grim and I am being told to appreciate all the moments I have with him now. I am intellectually dealing with that but in my heart, holding out that a stem cell transplant will save him. Anyway, when did it ever become okay to make fun of an illness, especially one that is so devastating to childhood?



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everyone should should tell the entertainment industry that it is tacky and horrifying to poke fun at children with primary immune deficiency diseases (bubble boy). For those of us who have to live with the horror of what these children endure, we are not amused. Big B
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